BILLS-107hr4013rh.pdf

JUNE 26, 2002 the fiscal years 2003 through 2006 fiscal year 2002 5 years annual MARCH 20, 2002 biennially 4 2002 1993 1983 many years the 1970s

SESSION the ‘‘Rare Diseases Act

the United States Rhode Island Indiana Huntington Ohio Connecticut the United States of America Florida Virginia United States Texas New Jersey Oklahoma California North Carolina

Americans

the Public Health Service Act Institutes of Health National SEC NIH Congress the National Institutes of Health Office Health Committed to the Committee of the Whole House an Office of Rare Diseases U.S.C. the Office of the Director THE HOUSE OF REPRESENTATIVES Department the ‘Office’ The Office of Rare Diseases the Food and Drug Administra- the National Institutes of Health IB Union Calendar No Committee An Orphan Products Board an Office of Rare Diseases House of Representa- the National Institutes of Health the Food and Drug Admin- the State of the Union the National Organization for Rare Disorders 8 Ms. NORD New Federal NIH OFFICE OF RARE Energy and Commerce Rare Diseases Health and Human Services LENCE Senate

Lou Gehrig’s SANDERS CAPPS SUNUNU SLAUGHTER LOWEY WELDON FRANK TOM PRICE WOLF Duchenne 15 LYNCH JOHNSON SHIMKUS ROUKEMA WEXLER Orphan HOEFFEL Crohn GREEN CARSON ISAKSON KELLY SCHAKOWSKY GEORGE MILLER MORAN BONIOR FOLEY MCGOVERN SMITH LANTOS WOOLSEY MORELLA MINK KING LEVIN WAXMAN LUCAS MCKINNEY MCDERMOTT GREENWOOD BROWN PALLONE WYNN RUSH HORN KENNEDY DEUTSCH NORTON

rare diseases rare office rare diseases orphan diseases disorders disorders orphan drugs institutes institutes health national institutes drug act drugs orphan drug research