BILLS-107hr4013ih.pdf

the fiscal years 2003 through 2006 fiscal year 2002 the 1970s 1993 5 years biennially annual 2 2002 MARCH 20, 2002 many years 1983

the ‘‘Rare Diseases Act SESSION H. R. 4013

the United States Huntington the United States of America United States Ohio

Americans

Institutes of Health the Public Health Service Act National SEC NIH Congress Office U.S.C. Health the National Institutes of Health an Office of Rare Diseases Committee An Orphan Products Board an Office of Rare Diseases the Office of the Director the National Institutes of Health House of Representa- NIH OFFICE OF RARE Energy and Commerce the National Organization for Rare Disorders 2 Rare Diseases the ‘Office’ Health and Human Services LENCE Department THE HOUSE OF REPRESENTATIVES Senate tional Institutes of Health the Office of Rare Diseases the Food and Drug Admin- the Food and Drug Administra- NORD New Federal

RUSH Lou Gehrig’s KING FOLEY BROWN GREENWOOD WAXMAN Duchenne 13 Crohn ROUKEMA SHIMKUS Orphan

rare diseases rare office rare diseases orphan diseases disorders disorders orphan drugs institutes institutes health national institutes drug act drugs research orphan drug