BILLS-107hr4013eh.pdf

fiscal year 2002 the fiscal years 2003 through 2006 5 years October 1 2 2002 1983 biennially 1993 the 1970s annual many years 2002

SESSION H. R. 4013 the ‘‘Rare Diseases Act

the United States United States Huntington the United States of America

Americans

the Public Health Service Act National Institutes of Health NIH SEC Congress Office U.S.C. an Office of Rare Diseases Health NORD the House of Representatives the ‘Office’ The Office of Rare Diseases the Food and Drug Administra- the National Institutes of Health the Office of the Director tional Institutes of Health An Orphan Products Board House of Representa- the National Institutes of Health the Food and Drug Admin- Department New Federal the National Institutes of Health NIH OFFICE OF RARE Rare Diseases Health and Human Services LENCE Senate the National Organization for Rare Disorders 2

Orphan Crohn Duchenne 13 Lou Gehrig’s

rare diseases rare orphan diseases disorders orphan drugs diseases disorders drug act drugs office rare national institutes institutes health orphan drug institutes medicines